It has now become an orthodoxy that we are moving into the age of 'Big Data'. This derives from ever increasing processing power and the vast surge in connectedness - with mobile technologies at the forefront and sensors in nearly all appliances, we are set to have 50 billion devices by 2020 connected in the cloud. It is argued that medical decisions can be truly evidence based, combining the most complete medical science with personal data, drawing where appropriate on 24/7 monitoring through mobile devices and patient reported outcome measures. Lifestyle advice and preventive action can be honed with ever greater accuracy. Benefits from treatment, its best timing, lowest cost, better understood risk, and more predictable side-effects should all flow from this data transition, bringing lower costs and higher value.
Corporations are competing in both investment and rhetoric. In 2013 Google launched a new subsidiary, Calico, which Larry Page claimed would represent 'moonshot thinking around health care', and there have been many similar claims. But how is all this justified? And how can we ensure that those advances which do arise from this new control of data truly benefit patients, rather than just the provider - and that this will be a benefit distributed across the social gradient and globally?
What are the risks on the horizon? Data is often siloed and used for competitive advantage. Protocols around privacy could be tested to destruction; for instance, it is possible to reverse engineer anonymized data to identify individuals. Forbes magazine even reports a case of medical data being sold on EBay. How might these risks be best mitigated?
This session reviewed the claims for Big Data and its true potential, and sought to identify the conditions under which it should yield the greatest benefits to patients and populations.
NIH Launches a United Ecosystem for Big Data
National eHealth-the strategy for accessible and secure information in health and social care
PCORnet: The National Patient-Centered Clinical Research Network
Developing the Sentinel System — A National Resource
for Evidence Development
Is Size the Next Big Thing in Epidemiology?
Review of social determinants and the health divide in the WHO European Region: executive summary
Crossing the Qualilty Chasm: A New Health System for the 21st Century
The Applicability of Lean and Six Sigma Techniques to Clinical
and Translational Research
Health Challenges of the Future – a perspective from 1973
How Intermountain Trimmed Health Care Costs Through Robust Quality Improvement Efforts
Ethical, Legal, and Social Implications of Genomic Medicine
Positive lymph nodes do not metastasize
Optimal timing of pulmonary metastasectomy - is a delayed operation beneficial or counterproductive?
Bringing Big Data to Personalized Healthcare: A Patient-Centered
Framework
Big data: the next frontier for innovation in therapeutics and healthcare
Big data analytics in healthcare: promise and potential
Distant metastases do not metastasize
Application of statistical process control in healthcare improvement: systematic review
Higher Integrity Health Care Evidence-Based Shared Decision Making
Avoiding the Unintended Consequences of Growth in Medical Care - How Might More Be Worse?
Defining a Standard Set of Patient-centered Outcomes for Men
with Localized Prostate Cancer
Quantified Self-Public Health Symposium April 2014
Drowning in Big Data - Finding Insight in a Digital Sea of Information
All photos can be viewed and downloaded on Flickr
This session will bring together healthcare policy makers, practitioners and providers; data/information technology experts; patient and civil society groups; ethicists and experts in intellectual property and the law; corporate representatives; and the media.
The session is envisioned as being highly participatory, with a strong focus on building new insights, aggregating perspectives and experiences from different sectors, areas of expertise and regions.